Moody

I was in a foul mood yesterday. All day. I was grumpy and resentful with Hubby. Shouted at T when he behaved like the 7-yr-old he is. And yes, I lost my patience with Pudding when he started throwing things again. I nursed my grievances and stoked them until late afternoon. And the last straw […]

Summer

I’ve got a confession to make. I’m surviving the summer holidays. Even enjoying it quite a lot of the time. But sssshhhh! Don’t tell anyone because I don’t want to jinx it. Some people might think we’re strange as we haven’t booked a proper holiday anywhere – only a couple of long weekends, and one […]

Not to you

Many times I have laid in bed listening to your nightly party time, and cursing you for my lack of sleep. Last night though I loved hearing your surprised little ‘oh’s and cackles of laughter, the shouts of ‘wha da?’ from your dark room. You see, just before I’d been watching TV and seen a […]

Learning

Not Pudding. Me. It may be a bit of a cliche but Pudding definitely teaches me things. He is so friendly with everyone he meets, welcoming them with an open heart and no judgement, despite often being on the receiving end of judgemental looks himself. To him, everyone is a potential playmate regardless of age, […]

Nativity

Ah, the school nativity play. That time where parents struggle politely for the best vantage point to watch their sweet child parade onto the stage with all the others. The tinsel, and cobbled together costumes. The angel so busy looking out for her parents that she carries on walking and nearly trips over a shepherd. […]

The ‘new normal’

Last week I was having a conversation with someone about emotions. Of course when Pudding was diagnosed with Hunter Syndrome I went through all of them – anger, guilt, desperation. I was drowning in the strongest emotions that I’d ever felt. When you first hear that your child has a condition that may kill him, […]

Party!

Last week Pudding had a party to go to. One of those ‘Turning 5, and inviting everyone in the class’ sort of parties. I looked forward to it as a great opportunity to see Pudding in a large group of his peers and watch first hand as he interacted with them. It would also be […]

A world without…?

Last week I got round to watching a programme I’d recorded – ‘A World Without Down’s Syndrome?’ In it Sally Phillips, who herself has a child with Down’s Syndrome, raises concerns that a new highly accurate screening test will lead to an increase in the rate of abortions of those identified with Down’s (which is […]