Ups and downs

It’s been a funny old week. Ups and downs. Tears (mine) and vomit (Pudding). Hopes raised and feelings of despair. Some weeks fly by with barely a worry, and other times even the littlest of things can trigger days of anxiety and low mood.

I’ve said before that I hate it when Pudding is unwell. If he can’t tell me what’s wrong it all becomes a guessing game. At least this time we had some warning: Hubby had gone down with a sickness bug the week before so when I heard a strange cough in the early hours of Sunday morning it was a dash to find out which boy I had to stick a bowl in front of.

Ten minutes later (with first load of bedding in the washing machine) and Pudding was installed in front of the TV where he pretty much stayed for the next few days. Bang went our plans for meeting up with the rest of the family to wow the world with our wearing blue en masse! And also bang went my plans to spread awareness the next day.

Being stuck at home with a grumpy poorly boy watching the rain pour down outside was not guaranteed to raise my mood much. And the added tension of diving for the sick bowl every time he gave the slightest cough didn’t help.

BUT even in the down times there are always highlights. Seeing Facebook turn blue (or purple!) for MPS Awareness Day did help so thank you to anyone who supported that. Thank you to my gym who held a bake sale. Thank you also to the child who told me that my blue lipstick made me look like I’d drawn on my face with pen – it gave me the chance to let your parent know about MPS and my blog. Thank you to Hubby who made it possible to get to my first counselling session (more about that another time) on Tuesday when Pudding celebrated the end of his 48hr exclusion period from school by being sick again. And thank you to all the friends that I whinged at/cried on over the course of the week.

On Thursday we were finally able to send Pudding back to school and the sun even came out. When the sound of renovation work next door became just too much I could escape to the gym to do some writing and giggle my way through an aqua zumba class. And breathe.

Although it never feels like it at the time, the downs are usually followed by ups. I just have to be patient.

 

PS I mentioned on Facebook that we might have a date for the port surgery to be done. Spoke too soon unfortunately. But we hope that it will happen in early June.

Comments

  1. Angela fazzone'

    Have just come across your blog today and it was so lovely to read about the up of living with MPS. We lost our beautiful, intelligent and courageous brother to MPS 8 weeks ago. He was 46 years old and a true inspiration to everyone who knew/met him. Yes there are bad days but the good days outway
    them. I look forward to reading your blog more. Love to you all.

    1. HuntersMum

      Thank you so much. I am truly sorry for your loss – if your brother was as special to you as my little Pudding is to us, I know he will be very sorely missed. Much love to you all. xx

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