One hundred years ago Charles A Hunter, a doctor working in Canada, first described the symptoms of Hunter Syndrome. In 2017, there are still children dying from this and other mucopolysaccharidosis conditions. That is why MPS Awareness Day on 15th May is just as relevant as ever.
Every year we ask friends and family to join us in wearing blue (purple outside the UK). Clothes, hair, lipstick, nails – whatever you like really. Last year it was a Sunday, so me and the boys went out to a nearby stately home with Sister, Niece and Nephew, all dressed completely in blue. This year it’s a Monday – so great for making maximum impact at work, the supermarket or wherever!
The MPS Society have resources such as posters and fundraising ideas to help. You can even change your Facebook or Twitter picture to MPS Awareness. Go have a look and get involved – I’d love to see your pictures on the day itself!