Paperwork and assessments

Paperwork. Every SEND parent’s favourite thing. NOT! Endless pages of assessments that never really become easier. The joys of having to answer ‘No’ to question after question about everyday skills that any unaffected five-year-old could do with ease. When Pudding first entered the clinical trial his DQ (development quotient) score was 56 (so 56% of […]

Cliff-edge

I wrote recently about feeling lucky, and that’s still the case. But of course, life is more complicated than that. The truth is that right now we’re walking on a fairly even path. The sun is shining, we’re having a fun outing as a family and we’re enjoying the view. But somewhere up ahead of […]

Old Age

I often feel old these days. Let’s face it, I’ve always been a bit of an old fuddy-duddy, but lately it seems to be catching up with me physically. I’m not as flexible as I used to be. Hubby laughs at me when I get up off the sofa and have to hobble for a […]

Lucky

Well, what a hectic half-term that was. We headed to the wilds of a Yorkshire forest for 4 nights with my parents, Sister and family. Then it was back home for Pudding’s ERT, straight off to Leicester, via Martin House, and back just in time to drop both boys off at school yesterday morning! Hubby […]

Halloween

Tis the season of spooks and sickness bugs, nights drawing in and Halloween. Hubby is still recovering from the bug that Pudding and I both had so he wasn’t up to coming out with us. It was glorious weather yesterday but sometimes I find it downright scary to take both the boys out by myself. […]

The necessary

We’re back in Manchester again. Clinical trial dosing day. Sometimes it seems to come round really quickly. And today I really didn’t want to come. There’s a bug doing the rounds at the moment. Pudding had it last week and very kindly passed it onto me. It wiped me out completely on Friday (Hubby said […]

Gym

Many people consider going to the gym as a luxury. Not me. Anyone who knows me will vouch for the fact that I’m not a natural exerciser. I’m not completely sedentary, but the idea of going for a run (heaven forbid!) makes me shudder. But I joined a gym in January and have defied the […]

Marriage

Weddings are easy. I’ve never quite understood all the stress about them. We had a lovely little register office ceremony followed by a meal at a local restaurant for good friends and family. Marriage though, that’s the hard bit. Marriage, and any other long-term committed relationship, can be full of little niggles. ‘Why doesn’t she […]

Service Station

Service stations are so easy, aren’t they? You pull off the motorway, park up, and pop in for a quick loo-stop or a cup of coffee. Well that’s how it’s supposed to work anyway. But not if you’re in a car by yourself with Pudding. On our frequent trips to Manchester I try my hardest […]

A letter to our doctor

We usually meet in a clinic situation of course. Whilst I and the nurses don’t treat you with the proper respect and joke about all the time you spend away from the hospital playing golf (which you don’t) there is always a professional boundary. A line which I don’t feel I can step over. At […]